CPT Cancer

A journal about the intersection of military life, cancer, and being a single dad.

Tag: hunting

  • Remission 3

    I’m only sort of talking about cancer when I say that– more on that in a minute though. 

    See, when you start to reach a point in your journey where you start to feel like you’re breaking through plateaus, that’s when life starts to feel somewhat normal again. You can do the old things you used to do, sure, but they’re… different. Lately, I’m starting to feel less different in a lot of ways, and it feels good.

    Now, that’s not to say I’m anywhere near an approximation of “old me” in many ways, but there are some notable changes:

    • The quality of volume of my saliva and mucus is starting to improve, and I don’t have to scrub the buildup off of my tongue daily. 
    • My taste is starting to claw back some flavors, or at least essences, even if it is easily the biggest lag of all my treatment side effects so far. 
    • My fatigue hasn’t improved much, but my ability to manage it has. I drink about double the caffeine that pre-cancer me used to, which is an increase of two cups of coffee per day to four or five, and about half the week I’m not waking up to pee three or four times per night. 
    • My short term memory recall is still ass, but I’m getting better about writing things in my Notes app or on a physical notebook.
    • I’ve gained a whopping two pounds. Only fifteen more to go.

    I’m averaging about one hockey game per week, and I am ruthlessly enforcing my limits out there. In beer league there can be a tendency for guys to stay “on shift” (out on the ice) too long, but I am the opposite. Rarely do I lose track of time; if I sense I’m close to two minutes into a shift I look for the first opportunity to climb back over the wall– less if I’ve had to defend a breakaway on that shift. I wish I could get back to being someone who could handle defending multiple rushes per shift, but it’s going to be a while before I’m that guy again.

    I haven’t prioritized going into the woods since the opening weekend of elk archery but tomorrow I’m skipping out on being responsible for a day to try and find a bear in a unit I haven’t visited in a couple years to try my luck in the pouring rain. My intentions are pure– take it easy, be deliberate in all that I do, and do not take anything even resembling a risky decision. The weather will be against me and the Olympic rainforest is absolutely unforgiving in the fall; this is not the time to press my luck. If God decides I’ve been patient enough these last five years maybe my next entry will be written cloaked in a bear skin– or maybe my next entry will be titled, “how to activate your Garmin InReach SOS.” My guess is it will be something in between, given my luck. (Author’s note: This did not happen, I woke up after four hours of sleep, saw it was storming outside, and decided I was going to take a rest day.)

    Speaking of taking risks, it’s time to expand more on the cliffhanger from last week: Sarah.

    ============

    Hoo boy. What a journey. As of this writing it’s been over one calendar month since I decided to pull the trigger on telling Sarah how I felt. Despite the loss of confidence, my body image issues, my emotional baggage, and my extreme desire to not fuck up a good friendship… I decided to go for it.

    The existential crisis that cancer presents you with is different than an acute one like a car accident, combat, or bad fall. Sure, you can walk away from those things with a new outlook on life, especially if they require a long recovery due to injury, or if there was some sort of psychological scarring– but cancer hit me differently than any of those things. I was a hostage in my own body to a very dangerous and unpredictable assailant, and just like is the case in many hostage rescues, the rescuers can do just as much damage as the hostiles.

    I say all of that because when I decided to go for it after two weeks of deliberating, including a couple conversations with my psychologist and cognitive therapist, my calculation of what I decided an acceptable risk was had changed significantly from “old me.” Now the fear of the “what if” and “things left unsaid/undone” is a massively weighted factor in my decision making cycle. I could have five months left, five years, or fifty years– I don’t know. It’s not unlikely that God has fixed the time and place of my death so living like I’m trying to compete against that feels pointless.

    As an Army officer we are conditioned to always plan off of the “most dangerous course of action” so that we are prepared to deal with the less severe “most likely course of action.” This trains your mind to only see the most devastating impacts of being wrong, and does not do much to reinforce a positive mindset that tells you what is at stake if you don’t take that big risk.

    I went from feeling 2025 was going to be the undisputed champion of, “shittiest year of my life” to “wow, life comes at you fast.” The last couple years of being close friends made the transition to “couple” almost effortless and just about completely deleted the courtship phase of the relationship. Now, I still do take her on a date every week, and we are planning out future overnight travels, but we were so comfortable together already that the trust and respect was already pre-positioned– all we had to do was explore the romantic/intimate side of our new situation.

    In a lot of ways, “new me” extends beyond what I physically bring to the table now. There’s also been a massive spiritual, emotional, and moral shift. I’m making big, bold, decisions that were somewhat uncharacteristic of old me. At work life, with my personal life, and with my romantic life. What I mean is, I’m trying to do this the “right way” for once.  She has the advantage of knowing a ton about me already through osmosis and general conversation when we were “just friends” but I committed to being vulnerable right off the bat with her and becoming completely transparent. The good, the bad, the ugly– I disclosed everything over the first week of our new relationship. Get it all out there now, fuck it, nobody can say later I was holding anything back and coming at this without the purest of intentions.

    The flip side to this is that instead of slowly releasing the codes to the bombs, I just dumped them all into her lap. She possesses every key now. But that’s what love is, right? Giving someone the means to destroy you and trusting them not to?

    This blog isn’t primarily focused on relationships, but that is part of the journey. This is part of the journey. She is part of the journey now. She’s expressed a deep regret over not “being there more for you” when I was sick, but she’s also not the first person to say that… and that’s ok. Everyone has their own lives, their own crisis to manage, their own priorities. There’s a very short list of people I’m disappointed in for not showing up for me more, and she’s not on it.

    ============

    There have been a slew of medical occurrences since I last posted an entry. Three times per week I’m receiving physical rehab (strength training and conditioning), once weekly I see a cognitive therapist, once every 3-4 weeks I see an outpatient psychologist, and most recently I did my check-in with the ENT.  ENT, per tradition, scoped me and gave me an ultrasound. Three times each, to be precise. Once was the resident, once the resident and the chief, and once just the chief. 

    You might remember LTC Sierra, chief of ENT at the Army hospital, from earlier in our tale. She’s still there, and as usual she was in to see me after the resident was done with his initial run. Long story short, she thinks I’m fine but wanted to possibly biopsy me again because she doesn’t like the look of the lymph node that was treated when the cancer metastasized. She told me she’d deliberate on it, consult some colleagues, and get back to me. Great. Grand. Wonderful. NO MORE CANCER ON THE BUS.

    That friday she ended up calling me back and told me that she ruled out a biopsy, but wanted to get in touch with Dr Panner (RadOnc) at the cancer center to see if they could order some sort of fancy new blood test to see if it was, you know, cancer again. I haven’t heard back on this in a couple weeks, but I have another PET in a couple weeks, so inshallah, I guess.

    The views and opinions presented herein are those of the author and do not necessarily represent the views of the Department of Defense or the U.S. Army.

  • Remission 2 – Part 1: The Hunt

    (Warning: This is a LONG entry. So much so that I’m breaking it into two and releasing them a bit apart. Their relation to cancer or recovery is a stretch in some spots, so if that’s what you’re here for you can probably skip most of it.)

    The Hunt

    The day started simply enough, work was slow, probably exacerbated by the fact that I was watching the clock… waiting. As soon as our office close out was complete I stuck around a little bit to talk with a coworker about my coparenting woes and then I was off post as quickly as I could be. I had shit to do. It was the day before the western Washington archery elk season opening day. 

    The night prior I’d gotten everything packed and staged by my front door, ready to be packed up in Thomas’ truck on short notice. We were going up to my favorite hunting spot together and spending Friday through Sunday night in a wilderness area that bordered a national park. 

    See, my theory about elk in Washington since I got here in 2021 is that they spend all year in the National Forest, and then the night prior to opening day they run into the national parks, where hunting is forbidden. I’ve set up accordingly, finding natural funnels near park boundaries where I hope to interdict one on its mission to flee the orange army (I’m using that term broadly, hunter orange is not required during archery seasons in areas that don’t overlap with a rifle season). 

    Thomas has lived in this area since he left the Army over ten years ago. He’s got a wide base of experience in many areas of Washington, but he’d never been up here before. We’ve scouted together several times before, but never actually hunted together. This was an exciting first, and incredibly helpful for me as he has a truck that could carry both of our bikes out to our starting point. It’s always comforting when you don’t have to camp alone, and are also able to share resources to lighten the load. 

    After loading up my gear, we hit the road. It was a little over an hour to the terminus of an abandoned forest service road where we would park the truck (they’ve constructed a berm to deter people from going in and running into the many washouts). Upon getting to the berm my heart sank a little because I saw something I didn’t see last year… trucks. The ad hoc parking area was full once we had parked. The many fires in the area no doubt have been pushing hunters out of their planned hunts and this was likely the case as this area is largely unmolested by humans most of the year. 

    I changed into my hunting clothes, got ready, and took off. Thomas was on a human-power mountain bike (I have a minibike, which is a 196cc motor on a moped frame and fat off-road tires; I’ve modified it to be a hunting rig with racks, saddlebags, and a milk crate bungied to it for cargo storage) so he would be far behind me but after I set up my tent we planned for me to come back down the trail and relieve him of his pack so he could make better time. 

    I knew with the bike being heavier than usual, despite my lighter pack, that this would be a challenging venture for me. The road has five significant washouts, and getting the bike up and down them without load is a little perilous at times. Add in my degraded state, the heavier load, and the fading daylight and I knew the game was on. 

    The first four washouts went about how I expected- a pain in the ass but nothing I hadn’t felt before in the past. The fifth, I had always known since the days of coming up here on foot, was going to be the real test and boy was it a doozy. To add to the already treacherous nature of the washout, part of the path that was crucial to navigating it had collapsed into the wash. 

    Fuck. 

    I knew right away there was no way on god’s green earth that I was going to make it around this new obstacle with any extra weight on the bike, including the rider. I unloaded all the gear, my bow, the crate, and took off the packs on my person. I made a few attempts at getting the bike up an embankment by gunning the gas while walking beside it but the hill was having none of it. At this point I was already pouring in sweat trying to will this bike up the hill when I decided that this was the last washout and I was, ostensibly, home free after I cleared it. I shut the bike off and grabbed a number of pieces of deadfall and stones and built up the soft soil I was trying to manhandle the bike up to get around the new caved in area. This feat of primitive engineering worked with some patience, horsepower, and repeatedly giving the minibike motivational speeches such as, “come on you fuckin’ bastard.” 

    Eventually I was to the other side of the washout and I walked back across to grab all the items I’d downloaded to make it possible. It was then I did… something… to my knee. It hurt a little, but my ability to bear weight was unaffected so I rode on. This later proved to be a sprained ACL (more on this in Part 2).

    After getting to the area I’d identified prior as our campsite I got to work. The light was fading fast and I needed to get at least my half of camp sorted before I could turn around and relieve Thomas. Once that was done I set some chem lights out as markers to our camp and started back down the hill. I found Thomas much further down than I’d expected, walking beside his bike. He greatly overestimated his and the bike’s ability to work together to get up the 3,000 foot elevation gain over the span of about five miles. I took his pack from him and jetted back to camp which was still two and a half miles away. Upon return I tore into his pack, getting him set up with the faint glow of light I had left plus my headlamp. I figured it would take him roughly an hour to get to the camp so I once again set out to meet him, this time on foot, carrying just my headlamp, pistol, and one of his water bottles. 

    Right as I exited the trail to our camp, a woman was walking down the road with her own headlamp. I found this… strange. (didn’t most of them pick the bear?) She had no pack, no obvious weapons (although it was dark by now), and was just walking down the road alone. I introduced myself and she said she was walking back to her truck after dropping off and helping her husband and his friend set up their camp. They’d come up on dirt bikes but didn’t want to leave their truck at the bottom because of an unfortunate experience with vandalism in the past. 

    She (Michelle) said her husband, during his last run, had mentioned stopping and talking to a guy pushing a mountain bike and I told her it was likely my friend and that I was on my way to meet him. We continued walking together until we ran into Thomas, and Michelle continued down the trail while I took the bike from Thomas and walked with him the last quarter mile into camp. He was a little earlier than I’d expected, seeing as it was now 2130ish, but we still didn’t have a ton of time to get settled and to sleep. We chatted a bit, prepared for the next day, and eventually went to sleep. 

    Night time in the forest is not as loud as some would believe, in fact in my experience the quiet can be almost complete silence. Friday night was virtually silent other than a couple guys, on what sounded like e-bikes, making a couple runs up and down the road. I say it sounded like because they weren’t gas-motorized and I decided to forgo my hearing aids for this trip. I figured they would just amplify the wrong things, like my own footsteps, or get lost/broken. 

    I think I drifted off to sleep a little before midnight and woke back up around 0350 when I heard either the world’s loudest cow elk or some dildo practicing his “mew” (that is roughly the phonetic sound a female elk makes) in a bugle tube. I dozed for about 30 minutes more after that before naturally waking up at 0445. My alarm was set for five so I decided to just get moving. Thomas started to stir a little before five, probably due to my noise and light. Once we both emerged from our tents, he threw on a small collapsible pot of coffee he’d packed in and served them in collapsible cups. We sipped on our coffee and I ate a Mountain House blueberry cereal I had left over from last year. I added enough water to eat it with ease, and the nutritionist I saw that Wednesday on my rehab team would be happy to know that I finally started adding a starch to my breakfast. 

    I brushed my teeth, packed my kit and bow onto the bike, wished my brother good luck, and took off two miles in the dark to my trailhead. 

    Morning is my favorite time of day. My teenage self would undoubtedly be in utter disbelief to hear me say that, but it’s true. It’s even more true in the wilderness. You really get to watch the world wake up unencumbered by the sounds of humanity aside from airliners passing high overhead. There are few experiences like this in life. 

    As I cable locked the bike to a tree and started up the trailhead the glow of the morning was very subtly appearing overhead. As I rounded the second switchback on the trail I had a perfect view of the river valley in the distance and the glow was just beginning to outline the surrounding ridges. As much as I wish I could have sat there and watched the entire sequence, the clock was ticking. Elk, like most animals, are most active in the morning and evening. I didn’t have to hurry, but time was against me. 

    As I reached the alpine lake near where I’d planned to sit, I started looking for signs of people. The ground along the banks was too dry to betray any recent footsteps or animal prints with any sort of recency. I say that I started looking for people because there were two tents at the trailhead and I didn’t see any signs of people, so that means they were ahead of me or opted not to investigate the minibike that parked across the dirt area from them. My money was on that they were ahead of me. Fuck. Nothing pains a hunter more than another hunter being in “your spot.” As I descended back into the dark timber where I was relying on a path I’d memorized to get to the meadow I’d planned to overwatch, I began to really focus. Focus on my steps, my surroundings, and begin looking for signs of animals. 

    I keep using “animals” and “elk” interchangeably here because archery elk season overlaps with archery deer, bear, cougar, and small game seasons. I wasn’t planning on being picky. My freezer was empty save a few cases of electrolyte popsicles left over from my earlier treatment days. I am ready to take a break from industrial agriculture for a while, and Bambi’s dad would make a fine burger …as would any of his forest friends. 

    I got to the meadow opening and nocked an arrow just in case. As I was slowly walking along the edge of the meadow, I hear a snap to my right and see a guy sitting square in “my spot.” 

    You. fuckin’. bitch. God dammit. 

    I pointed to my trial camera and quietly took it down from the tree it was on just about ten yards from him. I picked my gear back up, used a hand gesture to indicate that I was going up the draw, to which he gave his approval with a thumbs up. There’s no legal reason I had to seek his approval, it’s all public land after all, but the fact is he put in the work to get there first and I wasn’t going to be a dick and ruin his hunt because I was mad he got there first. 

    I relocated 150 yards south and about 40 feet up from him. If this were rifle season that would be wholly inadequate for safety and etiquette, but during archery that is close to three times the distance most bow hunters will comfortably shoot. I found a log to sit beside, dropped my gear, pulled the SD card from the camera and pulled my tablet out to see what’s transpired in the seven weeks since it was put up. 

    I was absolutely blown away. A bachelor herd of three bulls that were all 5×5 or better seem to be regular visitors in the evenings, with a small herd of blacktail visiting when the elk aren’t occupying the meadow. There was footage of the elk fighting with their antlers or otherwise horsing around (heh) with either, a black bear and her cub, and the same pair being chased by a cinnamon coat black bear later on. The most significant capture was one of the last videos the camera took before the SD card filled up: a large adult cougar moving through the grass. It was an absolute unit; something you hope never decides to pay you a visit unannounced. I knew they were up here, by sign and probability, but to actually get one on film was pretty astounding.

    Death stalks the land.

    I remained in overwatch for a couple hours before I started getting a little chilly and bored, so I slowly and deliberately hand-railed the meadow around the half opposite the other hunter and continued on, following game trails to more small glades and benches in the topography. Eventually my knee ache really started distracting me; I decided to return to the meadow and sit on the opposite end of it from where I was previously. I figured since the other hunter was going to take prime real estate in the meadow, I’d sit on a hill overlooking the two trails game would use to get to it, in order to intercept anything before it walked in. Checkmate motherfucker.

    Thomas made brief radio contact with me once he started walking around an elevated area nearish to me, but probably a couple miles away in straight line distance. He sounded frustrated and I started to feel bad for him. This area was my idea and so far the only thing we’d gotten out of it was kick-ass footage from my trail camera. You can’t turn that into burgers, though, unfortunately. Then, I noticed I’d conducted my annual ritual of losing a hat.

    One of my least favorite hunting traditions is the annual loss of a hat. Every hunting season I lose a hat. Without fail I get too warm, I clip it to my belt, go through some kind of brush where it gets silently ripped off, and I am now without a hat for the rest of the hunt. This time I’d lost yet another “good” hat sometime while traversing a gentle old growth knob off of the main game trail I was following. Every. Damn. Year.

    As the sun dipped below the ridge I decided to start making my way out. There was no sign of any kind of recent activity and I didn’t want to be walking back in the darkness with a bum knee in my already degraded state of general poor stamina. Thanks cisplatin, you really are the gift that keeps giving! 

    By the time I got back to the bike and down the hill the sun had fallen below the horizon. Thomas was already at the camp boiling water for his meal and I settled in so we could talk about our respective hunts.  I ate after him- some kind of dehydrated “Pad Thai” I picked up at the PX because it was calorie dense. I still couldn’t taste much of it, but it did enough to placate my hunger; 900 calories is 900 calories.

    We talked a bit longer about the day, other hunts, future hunts, the plan for tomorrow, and other topics as the darkness started to soak into the dark timber around us.

    Right as we both zipped into our tents we heard it: the rumble of thunder. This wasn’t, by itself, alarming because we’d listened to distant thunder most of the morning. The Garmin forecast gave us only a 30% chance of being hit by a thunderstorm, so we decided by the time we saw that our odds were such that we’d stay and hope it would miss us again like it had in the morning.

    Hope is my least favorite planning factor.

    Before long there was lightning all around, thunder rolling, and a nonstop downpour making it impossible to hear anything but the impact on the tent. Trees were cracking and groaning. More lightning. More thunder. More rain. It went without end. We were at 5,000 feet and mother nature was letting us have it for the audacity to spend another night in her majestic presence.  The only reason we were able to fall asleep at all was our extreme exhaustion.  That was probably around 2200– roughly an hour into the storm.

    At 0300 I woke up. Something was different. That something was silence. Just as quickly as it had come on, the storm blew eastward and the fog moved in to replace it. I peaked out of my tent and saw that Thomas’ tent was still intact; satisfied he was probably still alive I tried to go back to sleep. I dozed for a couple more hours before waking up and putting my clothes on. Thomas got to work almost immediately on the coffee. It was at least ten degrees colder and we were in various states of damp from condensation or the downpour.

    We made a few alterations to our plan and started discussing what the end of the hunt looked like. The realization that we were not likely to be successful started to sink in but… maybe… maybe. We had to try. Why go through all of this if we weren’t going to at least try?

    I went down a long abandoned road, overtaken by grass and fallen timber. I knew it well. Last summer I about shook hands with a cow elk down here. I knew there were deer and at least one bear in here. I had to try. It was dead silent. The rain had since stopped. I put my wet weather gear into my pack and continued. “Keep going until you have to turn around so you don’t bust time,” I told myself. I wasn’t going to give up without milking every last drop out of this hunt.

    Then the first time I remember her creeping into my thoughts, at least since the last time we’d communicated a couple innocuous text messages through my Garmin, happened. “She’d love this,” I said to myself as I stood peering down the trail that was shrouded in mist and lined on both sides by dark timber. I smiled. No one was there to ask why, but I knew, and that was enough.

    More on that in Part 2.

    I got to the point I could go no further before I’d start seriously bumping into the time I promised Thomas I’d meet him at an area about halfway down the main road that we’d nicknamed, “The Quarry” due to the way the rocks had collapsed into a depression at a fork in the trail. I made my way back to the minibike and went back to camp. Thomas had already packed up his camp and left the items we’d agreed would go back down with me. I collapsed the remainder of my camp and loaded up the bike, and away I went.

    Soon enough I caught up to Thomas at The Quarry right around the time two younger hunters on e-Bikes had as well. We all stopped and talked together for a while; they got their shit rocked by the storm too and we shared some laughs over what an abject failure of a weekend it was.

    We wished them luck and kept going down the road. It was time to go. Thomas spied a doe but wasn’t able to get a shot off. The game had left and whatever remained was likely blown out by the storm to lower elevations. There’s a point where you tell yourself you’ll try again later, but in the back of your mind you don’t know when, if ever, that try will come. It’s self-soothing. A coping mechanism, perhaps.

    With extraordinary difficulty despite our combined power, we got the bike up the troubled washout. We stayed mostly together, both coasting, through the rest of the trail. When we got to the flat part at the bottom that still resembled a road I hit the gas and took off. I needed to get some frustration out and it had been a long time since I’d gone fast on something with two wheels.

    With that, the truck was in view, the trip was over. We talked to some other hunters at the bottom, changed, packed up, and left. I navigated us to a coffee stand in the mountain town nearest my hunting area and we enjoyed this trapping of civilized life. We drove back to my house and discussed work, plans, women, and life. We were beat. My knee was stiff as hell, and I still needed to get my gear dried out.

    Knowing full well I had no interest in doing it later, I went ahead and turned the inside of my garage into a homeless encampment with lines hanging from the rafters, gear taken apart hanging on hooks, gear on the table, everything unpacked and carefully placed to dry out.

    It’s still like that. It’s more than two weeks later. Fuck it. I’ll get around to it.

    What does any of this have to do with cancer? Well, it doesn’t, at least not in a way that makes sense but anyone but me. This was a weekend I didn’t even think was going to be possible over much of the spring and summer. I know I’m capable of incredible things because I will simply will myself through it, but I know that all the willpower in the world wouldn’t keep my body in check for as long as it used to. Stamina, fatigue, my unique diet, my insatiable thirst– all barriers to going back as far as I’d wanted. I didn’t think I’d get to do this trip at all. But I did. That was the only big win I got, however.

    In hindsight, my spraining my ACL on this trip was probably a blessing: it saved me from outstripping my water supply by ranging further. It saved me from outstripping my energy levels and making a serious mistake. Divine intervention? Maybe. Being weaker overall because of my overall health situation? Probably. Either one isn’t being ruled out. Both might have saved me from doing something monumentally stupid in the woods so I could continue writing this blog entry that is probably going to fuck up my life a little bit by the end of Part 2.

    I don’t know where I am, but I know exactly where I am.

    ============

    The views and opinions presented herein are those of the author and do not necessarily represent the views of the Department of Defense or the U.S. Army.

  • Prologue Part 11: The Waiting Game

    Forks in the Road

    A few days after I’d been seen at the university hospital I was scheduled to return to a different hospital campus in that same system a few exits further north, meaning in good traffic my daily drive would be at least an hour there and back.  This is a long way to drive for medical treatment by any standard, but even more punishing considering that I live in the largest metro area in the upper left corner of the country. Most days I-5 is unforgiving at best; in the Puget Sound metro area this day was no different.

    This is as painful as it looks.

    At this point I was used to pulling up to parking meters where I’d have to take a ticket and remember to have the medical office validate it on my way out for large garages or sprawling lots at some medical mall, and this day was no different. I took my ticket, and pulled up to the building that had “PROTON CENTER” in giant letters on the outside.  I was told that these buildings are actually built around the proton radiation machines due to their size. Big if true.

    Walking in through the front door revealed the stark difference between a general hospital and a cancer center immediately. Huge cathedral ceilings, couches in a giant waiting area that had a library, a snack bar, wifi, and two receptionists and their assistants. This was like comparing my local county rink to an NHL practice facility.

    I was greeted, a badge made for me, my parking validated, and given some paperwork to complete. I didn’t even have enough time to finish the paperwork before being called back to the “NASA” room where I was to see the first in a line of people that would be involved in my care. It’s called that because this type of therapy is most commonly given to pediatric patients and they’ve teamed with NASA to create interactive experiences to explain to the kids what is going to happen there. I was lucky to get a Star Wars band-aid at the doctor when I was a kid.

    First up was the “Patient Navigator” which is basically a social worker of sorts. I was given a lot of information in folders about my doctor, the treatment, the care team, facility, and additional information on nutrition, side effects, and lodging for the area.

    After that me and my mom were taken to a more standard clinical room where I was asked by the LPN to review my medications they were tracking and to take my vitals. She was followed up by my nurse, who gave me an IV port in preparation for my CT scan during mapping (the contrast fluid, like the others I’ve discussed previously, is given through an IV). Interestingly, she asked me if I wanted it in my chemo port or in my arm. I decided I wasn’t ready for the trauma of having a line run into my chest just yet and opted for a traditional arm vein. It came up during this conversation that my nurse also had a chemo port installed. I didn’t ask why, which I figured would be impolite, but my first reaction was no longer of curiosity, just sadness that another younger person has to walk around with this bullshit.

    Dr. Panner was unavailable to meet with me, but it wasn’t really a big deal to me. He’s not some sort of final boss like a video game- he’s more of a supervisor. He checks, validates, and troubleshoots problems no one else can figure out. The LPNs, RNs, radiation techs, and the other worker bees are the ones that would handle me day to day so it was more important to me to see their faces.

    The mapping process was virtually identical to the one I did at the Army hospital’s RadOnc, so if you want to relive that experience, check out this post. As soon as I was done, they said that I’d be starting in just over two weeks, to expect 33 treatments, and to expect a call within a few days of the start day to hammer out a report time. In the meanwhile I had appointments and other preparatory chores to keep me busy, but nothing exhaustive. I still had the big decision looming over where I wanted to do chemotherapy, but that wasn’t super pressing at the moment.

    I discussed it with mom, and we decided it would be best for her to fly home for a couple weeks because there was no real purpose for her to be here if I wasn’t going to be starting treatment when we first thought on 3 March. She booked a flight out for the next evening and that ended part 1 of my mom as a caregiver. She made it to all the important appointments, helped me survive the tube and port placement, and was a forcing function to get me to address some tasks I know I’d have been overwhelmed by if left to my own devices. Good moms are hard to come by; I’m luckier than most in this regard.

    The next morning I had hastily scheduled a dental cleaning since I had space in the calendar to do it now. Because I wanted one as soon as possible, the clerk at my dental office sent me to an office across post that I’d never been to. It was almost serendipity, because as it turns out, my hygienist was a cancer survivor. He had melanoma that spread to his lymph nodes and he told me all about his treatment and recovery. It was a different cancer with a different treatment, but a fascinating perspective. The cleaning was unusually gentle and fast and left me wondering if he had taken it easy on me because I was in the same club, or if my teeth were actually just that clean. I guess I’ll find out in six months.

    After a fairly uneventful phone call with a different social worker at the cancer center pertaining to lodging assistance I was skeptical I’d qualify for, I said goodbye to my mom and hit the road to go get the kiddos.

    ============

    The Decision

    I had a pretty good weekend with the kids. My daughter played in her hockey game in the morning, per usual, then came home to work on a new puzzle I’d gotten her from one of the local thrift stores. It was 300 pieces, which was going to be a new record for her, and I wanted to give her some time to relax before we went to the park. It was going to be a ‘false spring’ day, sunny and over 60, so I was planning on taking them down to a playground near Puget Sound and letting them wear themselves out with the undoubted throngs of other kids.

    I met an old Army buddy there with his kids and brought him up to speed with everything going on with my treatment, and caught up in general. We generally talk a lot of shop when it comes to hunting, and I lamented that I still have a bag hanging in a tree in the national forest with some of my hunting camp supplies. It’s 5 miles one-way to this bag; with a 2000 foot elevation gain and it stays snowy until after Memorial Day… yeah it’s gonna be up there a while longer.

    My son, who is barely removed from being a toddler and has some sort of developmental delay to boot, started melting down and I knew it was time to go. He was upset to have to leave but was generally moving with us toward my car. Then the fucking ice cream truck showed up.

    Giving this thing the title of “ice cream truck” is pretty generous. Some of you are already picturing what I’m talking about.  This thing was a minivan that probably had a salvage title, a bunch of coolers in the back, and “not for individual sale” ice cream bars and sandwiches being hawked from it. The poorly adhered labels on one side and obnoxious music blasting from it were the chef’s kiss on this tetanus-mobile.  Under no circumstances would we be getting ice cream from this thing.

    This is the Rolls Royce version of what I described above.

    My son had other ideas, and at first I had to grab his hand and pull him along, then he went dead weight and had to be picked up.  I slung him over my shoulder as he had a meltdown and eventually got him into the car. He viciously resisted being put into his car seat as the meltdown continued, using all the physical tools at his disposal. Normally this doesn’t bother me, as I will always win this contest, but in this instance I was nervous he’d grab at my tube or headbutt my port. Fortunately he didn’t, and by the time we got home he was done giving us a piece of his mind.

    The start of the next week was ushered in by me throwing on my uniform and showing up to the office. It was about time I rolled in and started chipping away at what few tasks remained on the docket. Right after lunch I decided I’d had enough and left to see about some prescriptions and other admin items that I needed to get sorted out. I felt as normal as I could tolerate for half a day.

    I had my mandatory referral to behavioural health, specifically a clinical psychologist who sees cancer patients, the next day.  It only took me four tries to get to the right office, as the annex I went to was loaded with ambiguous titled BH offices. Once I made my way to the correct place I filled out more paperwork, and was sat in front of a computer to do a fancy screening to make sure I wasn’t going to kill myself of others.

    I sat down with the psychologist and began to talk about the results of the screening (I passed with flying colors, you all are safe… for now) and a variety of subjects. He assessed that I was very resilient and had a good support system, so that if I wanted to come back I could do so on an “as-needed” basis. I am choosing to believe he is right and this is one appointment that I can permanently shed.

    It was around this time I started to solidify the decision about chemotherapy in my mind. The choice was: move my chemotherapy and all my specialty referrals over to the cancer center, or keep it all at the Army hospital. Ultimately I decided to keep it all at the Army hospital. Logistically speaking while yes, I’d be driving to the cancer center every weekday, over the long term and in acute instances I’d be seen at the Army hospital and it just made more sense to keep as much under that umbrella as possible. 

    While this was 100% my decision to make, I still felt a great deal of relief calling the cancer center to cancel my onboarding appointment with them later the following week. It just made sense, so, naturally, I fully expect this to blow up in my face.  Old habits die hard; in this case in the pursuit of not dying at all.

    (Author’s note: This may be the penultimate or final ‘prologue’ entry. Stay tuned)

    The views and opinions presented herein are those of the author and do not necessarily represent the views of the Department of Defense or the U.S. Army.